Ethical and care reflections concerning a recent case of euthanasia
The international press has been shaken by the recent news regarding a case of euthanasia applied to two brothers in Belgium. According to information available, the Verbessem twins, deaf since birth, were diagnosed with a degenerative ocular disease that would deprive them of their sight and would make them become Deafblind.
Since this is our area of expertise, EDbN cannot abstain itself from making a pertinent reflection that under no circumstances questions the decision of two adults of sound mind whose end fits into the terms established by the legislation of their country.
One of the objectives of the conference is to highlight the lack of accessible and reliable data to key stakeholders who are in a position to change this situation.
The European Platform of Deafness, Hard of Hearing and Deafblindness announces its first conference, Mind The Data Gap! Lack of statistics for an effective EU inclusion strategy?! It will be held this Thursday 15 of November at the Representation of the free state of Bavaria, Brussels.
Today, May 26th 2012, the “European Platform of Deafness, Hard of Hearing and Deafblindness” has been created in Copenhagen during the General Assembly of the European Disability Forum EDF.
This Platform has been formed to enhance, strengthen, and cultivate a robust and enduring collaboration between the European Cochlear Implant Users (EURO-CIU), the European Deafblind Network (EDbN), the European Federation of Hard of Hearing People (EFHOH), the European Federation of Parents of Hearing Impaired Children (FEPEDA), and the European Union of the Deaf (EUD), for the express purpose of benefiting Deaf people (including sign Language users), Hard of Hearing people, deafened people, and Deafblind people and their families regardless of the language, the communication system or the assistive technologies they use (hearing aids and cochlear implants). We aim to strengthen the EU 2020 strategy and the EU Disability Strategy as regards to full and equal participation in society.